Thank you for vising! This is our family's journey with Stickler's Syndrome. Dealing with a cleft palate, Pierre Robin, speech, eye issues, joint issues and anxiety associated with all of this. Follow our journey and learn as we do. Leave a comment and let us know you were here. Share your story in the comments as we all can learn from each other's struggles!
After my daughter was born early at 32 weeks, all I craved was a normal second pregnancy. But what is normal? What I got, in my eyes, was far from normal. This is my journey dealing with the growth and acceptance of this new "normal."
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